MS Vlog Support Group
MSVlogSupport's Channel
 
 
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CCSVI Who are we fighting, will you be heard?
CCSVI A Vascular Problem
We are CCSVI Fighters.wmv
 
Differential Diagnosis
 
MSVlogSupport
Profile
 
Name:
Andrea
Channel Views:
10,432
Total Upload Views:
17,518
Joined:
August 14, 2009
Last Sign In:
3 days ago
Subscribers:
316
This is my experiment with an online support group for those who may be house bound or alone and need some kind of interaction with others.

Or just an outlet for what you are going through.

Video responses will be allowed for every video, if you do not have the ability to record yourself, please do a written response or feel free to send a private message.

This is a place to ask questions or share your ideas to help others with your own experiences.

Caregivers, Friends and family are also encourage to participate.
About Me:
 
My name is Andrea, you probably know me from my other Channel here Renoandi . I am Just a woman with MS trying to make a difference and hoping to maybe help some people and make some new friends.
Country:
United States
Occupation:
Disabled but find my voice and new self in helping others with the disablying diseases
Hobbies:
Film, Music, Learning the Piano,
Recent Activity  
MSVlogSupport liked a video (10 hours ago)
Pissed off at Gov'ts for block Liberation of CCSVI
 
 
MSVlogSupport liked a video (3 days ago)
On 2 June 2010 I had a successful procedure done to correct my poorly fu...   more
 
 
MSVlogSupport uploaded a new video (3 days ago)
Omario, Astrid, Judy, Angela & Mark all worked on this together as a tha...   more
 
 
MSVlogSupport liked a video (3 days ago)
One month follow up
 
 
MSVlogSupport liked a video (1 week ago)
Talking about CCSVI and Multiple Sclerosis. Some people with MS are bein...   more
 
Channel Comments (66)
sandyCanada56 (9 hours ago)
Hi Andrea. I found the video and I had even responded to it from "sandywatts500". Thanks, don't bother doing it again. Even though I have closed that account, I can look through the many responses to the "4 questions" video
sandyCanada56 (13 hours ago)
Hi Andrea! I just love the recent video!
I was wondering if you could ask the question through the Vlog, if people are taking any supplements such as Vitamin D3 or Multiple Vitamins, for example. And if so, what dose, why, and results if any? Also, is this as recommended by a physician, or just on their own? You may have a done a Vlog on this already.
When you have the chance to do so...no rush. I'm curious! Thanks.
Sandy
MrMarksman1980 (1 week ago)
i think this is a great idea to set somthing like this up pleas keep on doing a good job greethings Mark
erraticgem (2 weeks ago)
Thanks just the same! :)
shanai102 (2 weeks ago)
Hello, I am just stopping by to say I am doing well. How are you doing? Thanks for being a good friend!
trosper (3 weeks ago)
I miss your Face...hehe
christinedavi (1 month ago)
Thanks for being my friend. Hope your well.
Christine
33rojrsr (1 month ago)
Andrea thanks for accepting me as a friend, my son is ms dx five months ago, thank you for the effort you
are doing pro MS people, we don't feel alone with persons like you in this journey, God Bless you.
Rick.
MrsDogQueen (1 month ago)
Please tell me what a MS neck hug is. I have MS and I have this ALL the time. I thought it was just me.
MsMajaMS (1 month ago)
Hi! I was recently diagnosed with MS. Listening to your story makes me so thankful that I live in a country where healthcare is free, and I get all my medication without cost. I'm so sorry you're having such a hard time, and that your medication isn't working out.
I think the names of the medication is a bit diffeferent here, but they're starting me on one called Extavia, wchich is an interferon beta that I will take subcutaniously. For symptoms I take Lyrica and Sarotex (tricyclic antidepressant, which can also help with pain). I have severe trigeminal neuralgia and also a lot of pain in my legs. I used to be on Tegretol which was wonderful. Sadly I had an allergic reaction to it, and had to stop and swich to Lyrica. Lyrica also helps, but not as much. I've found that with nerve pain, these kinds of medication is all that helps. I've tried really strong painrelievers (narcotics like Valium), but it hasn't helped me at all.
I hope everything works out for you!!

Marianne
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