Profile
Name:
Diana
Channel Views:
9,812
Total Upload Views:
127,425
Age:
45
Joined:
September 15, 2005
Last Sign In:
3 days ago
Subscribers:
247
Website:
About Me:
YouTube keeps insisting on saying I'm 43. I'm not actually that old, but I am up now officially over 40.
And, I am happy about being over 40. I feel better now at 40 than I did at 30, or even at 20. But, I didn't get here overnight. It has been a long and winding road.
I'm happily married, and live in northern California, about 12 miles from the ocean, (as a bird flies.) I can't fly like a bird, so it takes me about 30 - 45 minutes to get there when I want to go surfing.
My husband and I met while surfing in Santa Cruz over 12 years ago. We were married in Hawaii, and now I have a cute kid that looks nothing like me. (He's mine, though. I saw him come out.)
We're both ocean people... some folks like looking at the ocean, and some folks liking being in the ocean. I guess I like both.
Our son has been going out in the water with us since he's about three, but just started surfing on his own last year. (He caught his first wave solo wave in Hanalei, Kauai. I should post that video. It was very cute. He's six and already waving to the little surfer girls...)
A friend from church once said to me: "If you didn't have fibromyalgia, you'd be leading a perfect life."
That's pretty accurate. I do lead a good life. I feel very blessed. My husband is a good man, and my son is a good kid. I like the town we live in, and our circle of friends.
The only thing that has ever thrown a wrench in the whole works is having fibromyalgia.
Fibromyalgia is a pretty big wrench. But, if you have the disease, too, you already know how much it can gum up the works.
How can I phrase this delicately? Well, there is a San Francisco based support group entitled: "Fibromyalgia sucks." Yes, I think that about sums up the disease in two words.
I wasn't diagnosed with fibro until after my pregnancy, but I'd had symptoms of it for many years. Raynaud's Syndrome. Migraines. Back pains. Severe "growing pains." (It shouldn't hurt to grow. Don't let your grandmother convince you otherwise.)
Yes, it was the pregnancy that forced me to accept this was more than just a few headaches and sore muscles from the gym.
Something was WRONG. I just didn't know what.
Unfortunately, neither did any of my doctors. For some reason, every single one of them missed all of the classic warning signs and symptoms for diagnosing fibromyalgia.
Hello! Shouldn't there be a seminar or something on this?
"Diagnosing fibromyalgia in miserable complaining pregnant chicks."
or,
"If she's got migraines, back pains, jaw pains and can't sleep, maybe it's fibro..."
Yeah, doc, go to THAT seminar...
(sigh)
How could ALL of them missed something sooooooooooooo PAINFULLY obvious?
Gheeeesh! There's five years of my life I will never get back...
Anyway, water under the bridge, right?
Well, if I can spare anybody from going through what I went through by sharing my story, or sharing what I learned, well, then I will keep making my silly little videos.
The number one cause of death for people with fibromyalgia is suicide. It is a reality you can only understand if you have the disease, or live with someone who does.
(My poor husband. There really should be a support group for "husbands of miserable chicks with fibro who HAVEN'T run out on their wives.")
Thanks to networking with others online, my health is vastly improved from what it was five years ago. Some days, I am almost symptom-free. (Almost. Not there yet.)
Each of us that gets well, has an obligation to help others get well. So, I am sharing what I have learned in the hopes that some of it might help you, too. I don't sell anything. Good luck to you on your journey. - Diana
Country:
United States
Occupation:
full-time Mom / freelance writer
Companies:
I used to work full-time in high-tech, prior to doing the Mommy thing. I freelance write a bit, here and there, but mainly I focus on my son. He's the only kid I have, and I plan on doing right by him.
Hobbies:
surfing (longboarding), writing (blogging and novel writing), computers (learning about new technologies, and repairing computers), science fiction, music (playing musical instruments, and singing in church choirs.) I play piano, clarinet, tenor drum, and guitar. Tenor drum and guitar are my favorites. Don't get to play the drum much as the band is back in New York. My guitar sits two feet away from my computer, and the fibromyalgia in my hands is much better, so I get to enjoy playing a lot more now. It doesn't hurt so much to reach for the fifth and sixth string chords anymore. Playing is a lot more fun when it doesn't hurt. I'm not a particularly talented musician, (two of my brothers have musical talent, and I realized long ago, that I don't), but I love music nonetheless.
Movies:
Don't watch much TV, but I do like a bit of sci-fi now and again. I TiVO Stargate Atlantis, Eureka and Battlestar Galactica, some Star Trek re-runs.
Movies: Star Wars, LOTR.
Music:
Beatles, Pink Floyd, U2, some classical music, some Christian music, some John Williams stuff.
Books:
This is going to sound strange, but I actually like reading computer manuals. I'm currently trying to learn all I can about Macs, so I'm reading a couple of Mac, and iLife manuals. I read fan fiction. I read books about fibromyalgia. I read science fiction. I read historical romance novels, (if they're well-written.) I've published two books, under a penname, but that was a very long-time ago.
Subscriptions
(6)
Recent Activity
|
|
dianacwolf subscribed to LymeOrNot
|
|
|
|
dianacwolf subscribed to shiradanin
|
|
|
|
dianacwolf uploaded a new video
Wow-- I was just full of helpful advice on this day...<br /><br />I talked about the advice my friend just received at her recent fibro doctor appt':
more
|
|
|
|
dianacwolf liked a video
Amateur handphone video recording of costumers at a flea market, Singapore.
|
|
|
|
dianacwolf uploaded a new video
I recorded this video over a couple of weeks, so it includes several exciting topics, including the ever popular fibromyalgia topic of exercise.<br />
more
|
|
Subscribers
(247)
Friends
(23)
Channel Comments
(37)







Happy Fibromyalgia Awareness Day. I just posted the link to your entire YouTube channel on Facebook for people looking for fibromyalgia info. <3
Jeanne
I am definately going to the doctors now to see if I may have the same as my mother (Fibromyalgia)...I don't if you and others have had the same experience but the doctors other in the uk have a tendancy to not take fibromyalgia or any chronic pain problems seriously...they tend to blame your pain on weight or stress, which is quite annoying but as you know if your in pain and suffer with chronic fatigue, ya gonna get stressed anyway...so, definately gonna stand up for my rights and get things sorted for once....hope you have a good week ahead.....Many blessings. Love from Sarah and family. xxxxx :)
Im sorry you lost your brother, *HUG* Have a wonderful day and I love your videos! Thank you for your efforts!
Mike and Marisha
I haven't been on YouTube very much for awhile (until just recently) and I just learned about what happened to your brother when I watched your "A Look Back at 2009" video. I am so terribly sorry for your loss! You are in my thoughts and prayers.
Jeanne