Welcome! The channel of "Lyme disease (and autoimmune diseases) Or Not".

In this channel, I will share my 40+ years of medical history and experiences in battling the misdiagnosed autoimmune diseases, before and after the Lyme disease treatments, and how I have been winning the battles.

Everyone has different situation, and hopefully you may extract something from this channel to make a workable recovery plan with your physicians.

No one doctor can solely treat this comprehensive disease (including LLMDs); thus, it is ESSENTIAL to establish "Lyme Center" in each hospital, or one by itself (similar to the cancer center). Here are the outlines of my channel:

1. My melanin theory and the symbiotic relationships among Lyme bacteria, retrovirus, parasites, fungus...and the other pathogens.

2. Both IDSA and ILADs must be right to certain degrees.

3. IDSA/CDC may be describing the very beginning or the very ending symptoms of Lyme disease.

4. "Tick bite" may be ONLY one of the transmission method (what is the possibility that a family of 5 or 6 have been bitten by ticks and infected with Lyme disease at the same time, as mosquito can not ?).

5. The symptoms of the other autoimmune diseases may show up at the stage of forming symbiotic relationships, or upon dissolving symbiotic relationships.

6. Inflammations (thus involuntary movements) within the body parts have been created by our immune systems to deal with these invaders.

7. Moles are formed by these symbiotic pathogens to hide from the immune system or the medicines, that moles are falling off or dividing into 2 or more moles during the treatments. Rashes, blisters, plaque/tartar, hardened skin...etc. may be the battlefields.

This channel and my work are contributed to my family (husband Mark, daughter Deborah and son Alex) who have been helping me during my illness, but unknowingly functioning with different degrees/levels of my early symptoms.

I am a chronic Lyme disease patient, without any medical or microbiology background.

However, I have passions to analyze the problems and to find all possible solutions, without knowing my life is a big puzzle for me to solve myself.

I have always been "healthy" or "looked" healthy. For over 42 years, I have had the beginning to the advanced symptoms of many autoimmune diseases: CFS, Alzheimer's, Lupus, MS, Fibromyalgia, Epilepsy, Meniere's disease, TMJ, Morgellons, Irritable Bowl Syndrome, ... etc., and occasionally I aged overnight.

August 5, 2003 was my life changing date when I read an article on the Washington Post about Amy Tan's story of being misdiagnosed for years and her Lyme disease's struggle. It was eye-opening to me...

I thought it would be the end of my health problems...

Nonetheless, the physicians (including IDSA president Dr. Donald M. Poretz) refused to diagnose or treat me as a Lyme disease patient because I did not look like one. Furthermore, My families did not believe in my illness as they listened to the physicians, the scientists or the CDC. There were also confusions from the Lyme disease controversy between IDSA and ILADs (LLMDs). But I learned that 2-4 weeks of antibiotics treatment recommended by IDSA might have created the majority of "Post Lyme disease syndrome", while many LLMDs themselves or their family members were still under aggressive antibiotics treatments after 5-10 years.

Luckily, I found a neurologist in DC who began my Lyme disease treatments in March 2004, and a wonderful PCP who believed in my health problems and my instincts (the little voice inside me). I am blessed that most of my medical expenses have been paid by the insurance companies, except co-payments. And, I am heading towards recovery, with decremental symptoms and incremental levels/degrees of immune system.

Everything happened with a reason. That little voice told me that I was lucky because I would need to present my experiences to help the others...