Profile
Name:
Lisa
Channel Views:
448
Age:
17
Joined:
May 21, 2009
Last Sign In:
3 hours ago
Subscribers:
13
About Me:
My mom and I run the Florida chapter of EDNF(www.ednf.org) Ehlers Danlos National Foundation, and i am an administrator for the facebook group Ehlers Danlos Syndrome- Zebras need zebras so come check us out!
I have had a nissan funduplication done in middle school before my EDS was diagnosed, detethering surgery, decompression/fusion of brain/skull from skull to C5 with no screws into C1 and am soon to start infusions for my HAE then deal with possible instability of my Cspine and Lspine.
Hometown:
Florida
Country:
United States
Occupation:
Keeping myself alive and helping the EDS community while waiting for the docs to start acting!
Schools:
I am currently on medical leave, should be in 11th but am still in 9th though i do take honors classes when i go. Missed half of first year for brain surgery, half of second year due to being completely bed bound for 6months, and did not get to go back this year due to being bed bound and reactive to almost the entire world from my HAE.
Hobbies:
Studying everything i can to work on my goal to become an EDS researcher/specialist one day.
Movies:
A Knights Tale is my favorite movie, way to many shows i will have to write all that later lol.
Books:
Almost all with words in them and even some that don't lol.
Recent Activity
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engodo2525 commented on Biskiing
"You defiantly gotta try it!
If you go to facebook then the Ehlers Danlos ..." more |
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engodo2525 commented on Pachelbel's Canon (full ver...
"Wish i could bring it with me today! Packed my CD player and music; look..."
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engodo2525 commented on meet the pets
"OMG your an Abba/A-Teens fan!?? So love their music!!! lol. Great video ..."
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engodo2525 commented on all about me
"Great to get to put a voice and face to the name! I'm Lisa, i talk with ..."
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Channel Comments
(11)
engodo2525's Groups (1)
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Description:
This group is intended as a safe place for people to discuss Ehlers-Danlos syndrome, to ask questions and give answers, to discuss hardships and their solutions
(more)
Tags: ehlers-danlos syndrome hypermobility double jointed flexible
Status: Public Created: September 02, 2009 |
Friends
(18)
Subscriptions
(31)
Anytime! I saw ur videos a while back when they first started one day but couldnt figure out how to make an account to reply i think lol. Can't remember but know i saw you earlier
whats YT and ME stand for?
And ya i study a lot and pick up fast with medical info; always have.
Is DR M a nickname or do you really practice?
What types of Dysautonomia is ur book on? Where can i find it? I can't read books but mom does(not quite sure why i cant do books, though i cant do to much on computer at a time either).
xNikki713x
Hola! Thought we could all use more friends lol.
Please know that we are suffering together, taking one day at a time, and God willing...we shall 'wake up' the medical and nonmedical people to let us 'come out' of the closet, too. Like ADD, like Jerry Lewis' telethons for MS...
You go, girl! Keep your Chin Up!
You are understood, and you are loved,
Highest Personal Regards,
Dr M