General Disarray
DarkWaterfall's Channel
 
 
Hello, you either have JavaScript turned off or an old version of Adobe's Flash Player. Get the latest Flash player.
Part 2???
Updates and Hot Cocoa (1)
EDS digestive system
 
Food Court Musical
The Mp3 Experiment Six
The Bird is the Word!
 
Mika - Grace Kelly
Bonnie Raitt - Angel from Montgomery
DarkWaterfall
Profile
 
Name:
Kerrilynn
Channel Views:
4,988
Total Upload Views:
20,650
Age:
27
Joined:
July 23, 2006
Last Sign In:
1 day ago
Subscribers:
94
Just one person out of many dealing with life and its chaos. Including, but not limited to, Ehlers-Danlos Syndrome and its accompanying conditions, Disability, and recovery from and eating disorder. This is my life.
About Me:
 
I live in chronic pain from Ehlers-Danlos Syndrome. Which is a rare genetic collagen disorder that causes my joints to dislocate and fall out of place. Along with it I also have Sensory Processing Disorder, Chronic Fatigue Syndrome and Postural Orthostatic Tachycardia Syndrome. I hope to spread awareness of my condition and of disability rights so that others will not feel so alone. It took 25 years for me to get the proper diagnosis, with spreading awareness, I hope that others will not have to go so long without answers or treatment.
Country:
United States
Hobbies:
The arts: Painting, Drawing, Music, Photography Crafting, Reading Meeting new people. Eating Disorders Awareness. Ehlers-Danlos Syndrome Sensory Processing Disorder/Sensory Integration Disorder Aspergers Syndrome/Autistic Spectrum Disorders Disability Rights and Awareness
Recent Activity  
DarkWaterfall became friends with engodo2525 (1 day ago)
 
 
DarkWaterfall subscribed to theWrongPlanet (1 day ago)
 
 
DarkWaterfall subscribed to PurlingSprite (3 weeks ago)
 
 
DarkWaterfall became friends with sicklygothgirl (1 month ago)
 
 
DarkWaterfall subscribed to jasmine0mugwort (1 month ago)
 
Channel Comments (12)
2182m (2 months ago)
I like your vidoes..Lots of great infomation! Could you add more more about Sensory Processing Disorder?
Please & Thanky ou!
ufo8mykat (3 months ago)
Thanks for joining the EhlersDanlosSyndrome group! I hope we get a good dialogue going that keeps us all moving forward, learning more, and growing closer as a community. Your videos are great!
jkweirich (4 months ago)
Kerrilyn, I'm your biggest "fan." You're an amazingly bright, spirited soul. The people in your life must feel beyond blessed to have you as part of their world. Thank you for being there to listen...
~Kassady
lucilleballfan100 (4 months ago)
I feel for you I have a disabilaty that causes a lot of leg pain I have had four operations on the same knee cap to keep it from falling out of place and the is always a chance for another one. The next step will be a knee cap replacement good luck on what you need to have done
DoodleDandyDoodles (6 months ago)
Kerrilynn- I am so blessed to NOT have a disability, but I know others who have struggled along and fought for soc. sec/disability. Even with an attorney, it can take years, unfortunatley. I was thinking that maybe you could obtain a PO Box  address for some of your viewers who want to help you to pay for your meds and other medical needs...Linda (From HappyTails Grooming in CT)
irishemz (6 months ago)
Love the page.
From a fellow zebra :) x
xAlethiax (6 months ago)
hey. my name's alethia and i saw your video on eds so i came to check out your channel. me and you have a lot in common. not only do i have eds, but i have pots and i am also recovering from an eating disorder. it's nice to see how other people who are similar to me coping with their disorders; sometimes you feel like everything that can go wrong with your body has gone wrong. at the age of 14 i already feel like an old woman. but i try to deal with my illnesses day-by-day and take the benefits of them, as few as they may be. best of luck and health to you.
xpsykoxpixiex (8 months ago)
Squeeeeeeeeeeee -- I only just got your response, life is very hectic all of a sudden, lol. That's great that NEADs is going well! ^_^ Hehe, Shadow is gorgeous =] And it's good that you're walking as much as possible -- be careful, though, don't wear yourself out too much! =D That's my worst habit, lol... I work casual at a news agency and can't say no to extra shifts.

Anyway, I gotta run -- got work in half an hour.

Have fun at NEADs ^_^

<33 Kitty
chinofiend (1 year ago)
hey i also have eds i have vascular and its nice to see people with eds on youtube
buddybodie (1 year ago)
Hii! :-)

You are really GREAT, FANTASTIC GIRL!!!!! :-)
I love you! :-)

And I wish you all the best to the future and no pain in your life! :-)

I have mild case of scoliosis, osteochondrosis and herniated disc, so I know what the pain is... And I wear a soft backbrace, too - some like yours. I know, it can help really against the pain, so I wish you are strong enought to wear your orthopedic appliances...

Have a very nice day and I wish all the best for you! :-)
Kisses! :-))
  1   2    Next